A potentially ground-breaking trial that is being hailed as the most important development in HD since the HD gene was identified back in 1993 has been announced by pharma companies Ionis and Roche. It involves the first human trial of a huntingtin-lowering drug, IONIS-HTTRx, which demonstrated a reduction in mutant huntingtin in the nervous system. […]
You can now read our annual report for the 2016/2017 financial year.
Huntingtons Queensland will host its annual general meeting (AGM) on Thursday 16 October starting from 6pm. The AGM is an opportunity for members to vote on important agenda items that are raised by the current Board of Directors, and also vote for nominees for the incoming Board of Directors. Members have been mailed an invitation […]
It’s been a big year at Huntingtons Queensland, and although 2017 is winding down, things are as busy as ever in the office! At the time of writing, Lauren is currently somewhere between Brisbane and Bundaberg attending support group meetings and meeting with clients, and Tressa is at the HD Clinic with our trusty volunteer […]
Are you one of the many people who listed ‘get fit’ as a new year’s resolution? What about ‘run 5km’? What about ‘support people living with Huntington’s disease’? If you said yes to any one of these questions, then we have the perfect event for you! Running for Nan’s HD 2017 You may remember the […]
This winter there are many people with Huntington’s disease with no home to go to. They desperately need your support. By donating to the Huntingtons Queensland winter appeal, you can help others living with HD to avoid a life of homelessness while accessing the services they need. Your support will: Provide non-clinical counselling in person […]
John* can’t cook dinner for his family any more. It’s too difficult to manage the many steps involved, so he simply leaves his wife Laura to do that. He used to be a great business manager, but he hasn’t been able to work for three years now. Sometimes his arm twitches, and he slurs his […]
The Huntington’s Disease Youth Organization (HDYO), together with all the HD Associations across Australia and New Zealand, are excited to host the first Australia and New Zealand HD Youth Camp! The goal of camp is to offer young people the chance to meet other young people impacted by HD, to learn about HD through […]
Some of our awesome 2015 team! The team at the HDQ office are in disbelief that it’s already half-way into 2016 – it doesn’t seem all that long ago that we were watching fireworks to celebrate the start of the year, and now we’re looking at tax returns and planning for the last part of […]
If you didn’t catch it yet: Discussing Huntington’s disease with unique and insightful observation, Lisa Genova spoke recently to Richard Fidler on ABC’s Conversation Hour. Following the success of her first novel, Still Alice, Lisa’s latest book Inside The O’Briens tells the story of a family dealing with Huntington’s disease. Inside The O’Briens is available […]