We don’t mean to startle you, but it’s already December!!
2015 has been a huge year for the Huntingtons Queensland community. We have welcomed new people, farewelled others, and have witnessed a number of changes, all with the goal of securing the future for the organisation and its community. We were pleased to receive confirmation of continued funding contributions from the state government until June 2019, and with our new Client Services Coordinator Tuija (pronounced Toya) on board, we are looking towards the new year with excitement.
The staff are all busily in planning mode for the coming year, but we thought it would be nice to look back on some of the great moments of 2015 as the year draws to a close:
- Our HYPe families celebrated one of best turnouts for a HYPe family lunch in April this year at Hotel Richlands. Families travelled from across south-east Queensland to be a part of it, and everyone enjoyed a fabulous family lunch together.
- Cam Wilson and his amazing team hit the record books in February, achieving a Guinness World Record for Indoor Karting (greatest distance travelled by a team in 24 hours), and raising funds and awareness for Queenslanders with Huntington’s disease. An amazing effort, and worthy of the world record!
- Throughout the year our client services team visited regions around Queensland to check in with our community, attend family support groups and offer support and information services in person. Areas visited include: Cairns, Townsville, Rockhampton, Gladstone, Mackay, the Sunshine Coast, Toowoomba, Ipswich and the Gold Coast.
- A passionate, well-dressed group walked for Huntingtons Queensland at the annual Bridge To Brisbane event; a simple 5km walk in glorious Brisbane weather to celebrate our community, and to encourage support from one another. We are already planning to participate next year, so make a note in your diaries: Sunday, August 28th 2016. Come walk with us!
- Huntingtons Queensland welcomed Kristen Powers to Brisbane for the free public screening of her documentary: Twitch. Kristen’s powerful story about the genetic testing process for Huntington’s disease was very well-received, and we were pleased to offer such an engaging and enjoyable evening to the community.
Of course there were countless more achievements, celebrations, and moments of joy and hope, both personal and public. With the advances in research, and the current clinical trials for gene-silencing drugs occurring as we speak overseas, our community has much to be hopeful for, and we will continue to keep you informed of research updates as we hear of them.
So, as we prepare to say ‘farewell’ to 2015, we thank you all for your support, feedback, patience and commitment throughout this year. We wish you and your family a peaceful, happy and hopeful Christmas and New Year period, and we look forward to 2016.
Wishing you a merry Christmas and a Happy New Year,
The Team at Huntingtons Queensland.