Below are our go-to list of interesting representations of Huntington’s disease in the media. Ranging from Australian news reports to heartfelt personal stories to feature length documentaries, there is something for everyone.
A Mind In Quicksand – visit their website
Twitch: The Documentary website
The Octopus – a feature-length documentary on YouTube about HD and testing (in French, with subtitles)
The Inheritance – documentary website
Huntington’s Dance – documentary website
The Lion’s Mouth Opens – documentary website
Alive And Well – documentary website
Breaking the Cycle is free to watch online.
A feature-length documentary on YouTube about HD and testing (in French, with subtitles)
Lisa Genova interview on ABC TV – available to view on iView until 18th March, 2016
‘Daughter shares the same Huntington’s disease gene which killed her late father‘ – Daily Telegraph, 12th March 2016
Lisa Genova on ‘Conversations with Richard Fidler’ – a radio interview with the author of Inside The O’Briens, broadcast through the ABC on 3rd March, 2016
Lisa Genova on ‘ABC Classic FM – Midday’ with Margaret Throsby – a radio interview with the author of Inside The O’Briens, broadcast through the ABC on 24th February, 2016
Sunnybank Community & Sports Club community news – November 2015
Coolum & North Shore Advertiser, 19th November 2015
Books:
Inside the O’Briens – a novel published by famed author Lisa Genova in April 2015
Ferris Wheel – a novel published by Katie Jackson
Eternal On The Water – a novel by Joseph Monninger
Breathless: An Inward Journey – written by C. Everette Hagler
The Woman Who Walked Into The Sea – a book chronicling the history of HD in the USA, by Alice Wexler
Blogs:
Sarah’s HD List – a thorough list of HD resources on the internet, ranging from science research to HD representations in the media to personal blogs
A Survivor’s Guide To Huntington’s Disease – a blog about living with HD
A Year Of Gratitude – a blog about living with HD
EmpowerHD – a blog for those at risk or HD positive
HDSanctuary – a blog for caregivers and those wanting to learn more about HD
HappyHuntingtonsDay – a blog about living with HD
Jacey’s Hope Faith and Love – a blog written by someone living with Juvenile HD
Jess Writes With Crayons – a blog written by a young Australian woman about living with the impact of HD
International News Stories:
We Have A Voice Radio – an international radio show dedicated to promoting awareness of HD around the globe.
‘Huntington’s Sufferer Rachel Rympa: Let Me Die‘ – an article published on 14th March 2016 in New Zealand
Should I take my own life – an 1st-person article published on 16th January 2010 by The Guardian (original link available here)