Our Board is responsible for the governance of Huntingtons Queensland. Tasked with overseeing the operations, decisions and direction of the Association, our board members proudly represent our Queensland community by voluntarily giving their time and expertise.
Jason de Bakker
Jason has an extensive background in corporate services, compliance and organisational development, gained over more than 20 years in the not-for-profit and community sectors. Jason is a graduate of the Australian Institute of Company Directors and has a particular interest in governance and strategy.
Jan is a strong advocate for families impacted by Huntington’s disease, having lived experience as a carer, and as a long-standing volunteer of Huntingtons Queensland, both at board level (for more than 10 years) and as a volunteer facilitator for her local support group. A former small-business owner, Jan claims to be retired – but we know better!
Gerry has been a stalwart of Huntingtons Queensland for more than 25 years, and is well known in our HD community as a determined and forthright advocate for families impacted by Huntington’s disease. Gerry, a retired corporate manager, also has many years’ lived experience of HD as a parent, husband and carer.
Shane is a keen and active supporter of the HD community. With Shane’s family affected by HD, he is determined to support all those directly impacted, their families and the goal for a cure. Shane has extensive experience in senior business management roles, having worked for more than 20 years for Telstra, and most recently in consulting roles across business transformation.
Susy has a long professional history with neurodegenerative disease, including Huntington’s disease, as a researcher in neuroscience. She has a PhD in Physiology, and has held a number of research roles in Italian and Australian institutions. She is currently working in a contract research organisation, in the field of clinical trials, and brings a highly valued scientific perspective to our work.
OUR CHIEF EXECUTIVE OFFICER
Jan has worked in the not-for-profit sector in CEO and executive leadership positions for nearly 20 years and joined Huntingtons Queensland in 2016. She has a strong interest in progressive neurological conditions, having worked in dementia and motor neurone disease, as well as supporting people impacted by cancer, stillbirth and organ donation.
A former journalist, Jan spent more than a decade in strategic communications in the corporate sector and for government agencies – including a stint as senior press secretary to a Prime Minister. In 2007 she was one of four finalists for the Australian NFP Network CEO of the Year Award.
In her spare time Jan paints, writes and travels whenever she can.
Our staff come from varied backgrounds, different experiences and perform a multitude of tasks, all with the purpose of ensuring our services can reach Queenslanders in need.
Caitlin has worked at Huntingtons Queensland as part-time communications coordinator for almost three years. She has a Bachelor’s Degree in Media & Communications (with Distinction), and coordinates the various communications distributed by Huntingtons Queensland: our website, newsletters, annual report, social media, direct mail campaigns, and all other letters and fact sheets.
Caitlin grew up in Toowoomba, and now lives with her husband, two dogs, four birds and a cat in their Brisbane home. When she’s not studying (she’s currently undertaking a Bachelor of Veterinary Science), she is listening to podcasts and audio-books, playing piano, or hanging out with her menagerie of furry and feathery creatures.
Cathy has worked extensively in the not-for-profit sector for over 15 years. She has expertise in administration management, IT, fundraising and event management. Cathy’s interest in not-for-profit work developed while volunteering when her children were babies. She has become very passionate about providing support to people that need access to specialised services and information.
When she is not at work, Cathy enjoys organising events and activities for friends and continues to volunteer when time permits. A keen amateur photographer, she is not surprisingly more comfortable behind the camera than in front of it.