Forum and Video Presentations

In 2022, it was wonderful to welcome a room packed with attendees to see speakers from around Australia presenting on a range of topics.

Presentation: Jason de Bakker – Director, Huntingtons Queensland

Presentation: Julie Stout – Monash University

Presentation: Shaun Riley – Operations Manager, Huntingtons Queensland

Presentation: Tina Knight and Deb Field – Social Worker

Presentation: John Haberecht – Interim CEO, Palliative Care Queensland

Presentation: Talisha Bryden – Occupational therapist, OpportunOTy

Presentation: Associate Professor John O’Sullivan – Senior Neurologist, RBWH

Presentation: Angelika Straker – Family member

Information session via Zoom with Audrey from Huntington’s Disease Network of Australia (HDNA) explaining what the Map-HD registry is, who should register and what the data collected will be used for. This video will be of interest to people who are impacted by Huntingtons Disease, family members, carers, suppor workers and health professionals.
Email for more information.

Zoom Presentation: Aundrey Hulme – HDNA

In 2021, after delays due to Covid, Huntingtons Queensland hosted the 2021 Alecca McKinless forum: By your side. We were delighted to welcome speakers from around Australia covering topics about mental health, speech and feeding issues, financial planning and research.

Presentation: Julie Stout – Monash University

Presentation: Geri Kampen – Family member

Presentation: Jan Samuels – CEO, Huntingtons Queensland

Presentation: Shana Taubert – Speech Pathologist, RBWH

Presentation: Luke Muir – Financial Planner, LM Wealth Partners Pty ltd

Presentation: Dr Rhys Thomas – Neuropsychiatry Registrar, RBWH

Presentation: Angela Abell – Family member, Director Huntingtons Queensland

In 2019, Huntingtons Queensland hosted the 2019 Alecca McKinless forum: Planning for the Future. We were delighted to welcome speakers from around Australia and the world, covering topics about positivity, research, and planning for every step of the journey with Huntington’s disease.

Keynote speaker: Catherine Martin, Executive Director of Huntington’s Disease Youth Organization (HDYO)

Presentation: Dr Robert Adam, Clinical Neurologist at Royal Brisbane & Women’s Hospital
Presentation: Professor Julie Stout, Clinical Research Psychologist at Monash University

Presentation: Janice Brown, mother and grandmother from a family impacted by Huntington’s disease

Presentation: Jan Samuels, CEO of Huntingtons Queensland

Presentation: Sabrina Palham, Advance Care Planning

Presentation: Lenni Duffield, Executive Officer of Huntington’s WA

Keynote presentation by Professor Julie Stout

Held during international Huntington’s Disease Awareness Month in May 2018, this sold-out forum welcomed individuals, families, professionals and supporters from far and wide to listen to a wide range of speakers about research, self-care, planning and personal journeys.

The event was made possible through the generosity of Alecca McKinless, whose bequest enabled this event to be hosted free of charge to attendees and participants. In addition, Alecca’s husband Alan continues to support people impacted by Huntington’s disease, and was adamant that the presentations needed to be available to everyone, not just those who could attend in person. We agree wholeheartedly!

And so, we are delighted to share with you the presentations from our wide range of speakers.

Lighting the Way forum 2018: a message from founder Cliff Farmer

Lighting the way forum 2018: Key note speaker Professor Julie Stout

Lighting the way forum 2018: Linda Wornham, Genetic Counsellor with Genetic Health Queensland

Lighting the way forum 2018: Cathy Dart, Psychologist

Lighting the way forum 2018: Dr Trent Woodruff, Queensland-based researcher

Lighting the way forum 2018: Janelle Rawlinson

Lighting the way forum 2018: Kerrie Morgan, Spark NeuroCare

Lighting the way forum 2018: Kelly Stamnas, Running for Nan’s HD

Lighting the way forum 2018: Breie Starkey