Information session via Zoom with Audrey from Huntington’s Disease Network of Australia (HDNA) explaining what the Map-HD registry is, who should register and what the data collected will be used for. This video will be of interest to people who are impacted by Huntingtons Disease, family members, carers, suppor workers and health professionals.
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Zoom Presentation: Aundrey Hulme – HDNA
In 2021, after delays due to Covid, Huntingtons Queensland hosted the 2021 Alecca McKinless forum: By your side. We were delighted to welcome speakers from around Australia covering topics about mental health, speech and feeding issues, financial planning and research.
Presentation: Julie Stout – Monash University
Presentation: Geri Kampen – Family member
Presentation: Jan Samuels – CEO, Huntingtons Queensland
Presentation: Lauren Ward – HD Adviser, Huntingtons Queensland
Presentation: Shana Taubert – Speech Pathologist, RBWH
Presentation: Luke Muir – Financial Planner, LM Wealth Partners Pty ltd
Presentation: Dr Rhys Thomas – Neuropsychiatry Registrar, RBWH
Presentation: Angela Abell – Family member, Director Huntingtons Queensland
In 2019, Huntingtons Queensland hosted the 2019 Alecca McKinless forum: Planning for the Future. We were delighted to welcome speakers from around Australia and the world, covering topics about positivity, research, and planning for every step of the journey with Huntington’s disease.
Keynote speaker: Catherine Martin, Executive Director of Huntington’s Disease Youth Organization (HDYO)
Presentation: Dr Robert Adam, Clinical Neurologist at Royal Brisbane & Women’s Hospital
Presentation: Professor Julie Stout, Clinical Research Psychologist at Monash University
Presentation: Janice Brown, mother and grandmother from a family impacted by Huntington’s disease
Presentation: Jan Samuels, CEO of Huntingtons Queensland
Presentation: Sabrina Palham, Advance Care Planning
Presentation: Lenni Duffield, Executive Officer of Huntington’s WA
Keynote presentation by Professor Julie Stout
Held during international Huntington’s Disease Awareness Month in May 2018, this sold-out forum welcomed individuals, families, professionals and supporters from far and wide to listen to a wide range of speakers about research, self-care, planning and personal journeys.
The event was made possible through the generosity of Alecca McKinless, whose bequest enabled this event to be hosted free of charge to attendees and participants. In addition, Alecca’s husband Alan continues to support people impacted by Huntington’s disease, and was adamant that the presentations needed to be available to everyone, not just those who could attend in person. We agree wholeheartedly!
And so, we are delighted to share with you the presentations from our wide range of speakers.