Researchers at Edith Cowan University are undertaking a research study investigating health literacy and ehealth literacy in individuals living with neurological conditions and caregivers. The information gathered from this study will help to understand whether health information is being communicated appropriately for people living with neurological conditions. If you would like to participate please visit […]
HD Buzz share some exciting new findings – a promising new huntingtin lowering drug that can be taken as a pill.
We are pleased to share the link to the recent Roche community presentation of tominersen data and planned trail as mentioned in previous posts and emails.
Due to the current Omicron Covid outbreak, we are suspending all ‘in person’ Support groups during February for the safety of our clients and staff. We hope to resume again in March. Our staff are of course still available if you need support or have questions. We will also be holding an extra ZOOM chat […]
HD Buzz explain the update on the Roche trial data and upcoming Phase II trail
Following the disappointing news in March last year that Roche’s highly anticipated drug trial for the HD drug tominersen would be abandoned, we’ve had a more promising start to 2022! Roche has just announced that they will be starting a new Phase II clinical trial into the drug, which they say appears to have some […]
We are pleased to share the outcomes from the Stout Labs 2021 research update.
Just are reminder that we are back at work from today
Our latest newsletter is now available. Read it now!
Living safely is a challenge for many people with Huntington’s disease. This Christmas your gift will help us to support people with HD live safely in their own home.