Map-HD Registry

People impacted by Huntington’s disease have a new way to help shape the future: by joining the Australian Map-HD Registry. The Registry is the first part of a multi-year initiative – the Huntingtons Disease Network of Australia – led by Professor Julie Stout, from Monash University.  The HDNA will help to map how many people are affected by HD and where they live; advocate for better care and services; and lobby for effective treatments and a cure. The HDNA will also be a way for families, researchers and state HD associations to work together more effectively. Anyone affected by HD, including family members and carers, can take part. Learn more at, email or call 03 9902 0081.