Research into Huntington’s disease is conducted in Queensland, Australia, and around the globe, with updates available on a regular basis. It can be confusing and overwhelming when trying to find reputable sources of information about HD, so Huntingtons Queensland has done the hard work for you and compiled a list of reputable websites to help you understand HD better, focus your reading, and engage with the worldwide community. Huntingtons Queensland distributes many of these updates on a regular basis through our Facebook page and newsletters, so be sure to follow us there to keep up with the latest news and updates.
Reputable Research Sites
– Centre for Palliative Care Research and Education (CPCRE) – a Queensland Health consortium of organisations dedicated to improving and maintaining the quality of palliative care through scientific exploration and engagement with local agencies
Reputable Individual Blog Sites
Cure HD “At Risk For Huntington’s Disease” – This blog written by someone who is gene positive, containing drug trial updates and investigating the current atmosphere surrounding support and services for people impacted by HD
Reputable Study Sites
Reputable Compilation Sites
If you know of a fantastic site not listed here, please email our Communications Coordinator at firstname.lastname@example.org with a link to the site so we can include it here.